It’s sometimes hard to put into words when someone with an aggressive multiple myeloma loses the battle. Arnie really was a beacon for all of us, courageous, informed, and willing to do a lot to get thru to another day , or year. I am sad, and grieving for his passing. Not sure what else to say, but it’s sure a sad day. ;(
ATT should be here soon hopefully to fix this ongoing internet issue. We are getting kicked off wifi like all the time. So with her starting her online school again soon, I hope this is resolved. Plus we are paying for u verse to work actually.
I’m pretty caught up on fly lady, the living room zone takes me about 10 minutes since it’s clutter free for the most part. I do want my son to take out the VHS stuff he bought cuz I don’t want it there and nobody is watching VHS.
I need to do the windows inside, not outside. I’ll schedule outside soon when I can use the windex spray for windows. It works very well.
Oh, I’m reading the best book,”Delicious” by Ruth Reichel. It is outstanding and I love the food stuff, of course. I would go get, and read it. You’ll really like it, if you like foodie books.
I’m waiting today to hear from the nurse if my ANC is up so I can start revlimid. Also, almost all my diarrhea issues are gone, so I guess it’s the Revlimid. Kinda a bummer to go back on. I didn’t have these issues with revlimid before so, maybe it’s after a while it develops.
We are on day 425, I’m still not super energetic and now I realize it’s probably my low blood counts. But, I’m still just putting one foot in front of the other. We are also getting out later as sunrise is now 6:01. I’m not into busting out there at 5:15 and in the dark. We will just keep walking in our own way. It’s not a race, just a project.
I’m hoping too we can narrow down the car search for my son. I’d like to get another Prius but wow, talk about expensive, so not sure we can go that way. All the used cars that we like are out of our price range and/ or have many miles soooo.? Not sure.
Just came back from getting blood test. Hopefully my ANC is back up and I can start revlimid Monday. Not that I want to but what’s the alternative really.
We’re still looking at used car options for my son. Everything is so ridiculous with huge miles. When we bought the Santa Fe, we researched it for 6 months and knew exactly what we wanted. It was easy. This is not easy. I’m not going to take a loan out and really I’m not sure we should even be getting him another car but here in California it’s hard to get any where with out one. So no car, no job, and so on, no school etc.
I’ve seen a few options but it’s limited.
I’m off to the library in a bit. Still feeling somewhat tired so hoping my neutrophils are up.
I just finished a very good budget book,”the Debt-Free budget book”. I got slot of good ideas out of it so I’m trying it out. I still have my YNAB and I am going to buy the upgrade after the trial period.
So, off then to the library.
Well, I think things are back to something called normal. No, not really.
My son is home safe and sound. He’s trying to figure out his next step sans car. We will try and find some sort of car once the insurance is done. But I also need to call Allstate and find out the bad news of how much our premium is going to change because of his accident.
Then my daughter turned in her notice so she’ll work this week and that’s it.
Ah, is there some sort of trend going on here. ..?
I think it’s the right decision but, that means she’s home a lot ,as she is not too social. Ah, okay she’s not social at all.
So is this the new normal,? Geez, I hope not, cuz I will not be a happy camper with both my children just hanging around even if they are in school. ( graduate school and junior college). Still…..
Okay, as I mentioned I’m off revlimid till my ANC goes up. But, for the most part I’ve felt awful. Like this morning I’m feeling nauseous ? Why? I have no idea. So is it drugs coming out of my system? I have no idea, but I’ll get a blood test Friday and know Monday whether I should start the revlimid. Geez, you think I’d be feeling great:(
Oh well, I’m off to the library and then figure out dinner. It maybe a pizza. I’m kinda tired of cooking. Oh, plus, I have been very fatigued, so I’m guessing that it is my neutrophils. I just can’t cut a break.
Well, on that depressing note….
Even though I’m not permanent staff at the library, I have maybe only taken 3-4 days off due to being sick in 8 years. I have taken vacation time but not sick time. Today I did. I just didn’t feel up to going in for a number of reasons. The worst is I am pretty stressed about my son. Here’s the saga. He over does it the last day ( night driving)…. And is in an accident. Single person, off the road, thankfully he’s alright but the Prius is totaled. So now he’s back there with no car, and we are dealing with insurance. Plus, now we are going to have to pay for a flight home. What is going on. Plus we are paying for a hotel. The plan was he would hotel the first night, get situated and then find a campground till he knew what was going on with the GF. So, we still don’t really know what’s going with the girl friend, but since he has no place to land, he’s flying home this weekend. What a disaster is all I’ve got to say.
So, that’s why I need a day off from the world, and I took my 15 year van for a belt and pretty much was told my van is shot. Needs a ton of work….
So, now what???
Not happy news plus costing us. I am very thankful my son was not hurt, so I’ll look on the bright side.
I’m sitting here in tHe chemo room. A 40 minute infusion of zometa. IV got my Gatorade and a blanket. Plus, of course, my iPad.
Hopefully I won’t spike a fever tonight, so I’ll drink lots of stuff.
So, he’s holding off starting Revlimid a week cuz my neutrophils are@ 1300. It’s not too bad but it’s lower than it has been. So I’ll stay off an extra week. I kinda figured something was up. The good news is m protein is holding steady at .3 so no change.
I’m still having diarrhea problems, so maybe a week off extra will help. He doesn’t seem worried about the holding off a week. I’m more the worrier. About most things.
I didn’t feel good yesterday. I don’t know if it’s stress or sinus or that’s it’s been so hot. But I feel better today. I’m off to see a dermatologist today. I have some moles to check out. Although I’ve always had these, I suppose it’s a good thing to be proactive, although since I already live with cancer, does it really make a difference. Maybe I’m slightly depressed. I don’t like the heat and I feel sluggy when it’s hot.
I’m still walking the JKWP . I’m on day 414 ,I think. But it’s been uninspired. Just putting one foot in front of the other.
Also, I’m really looking at our retirement plans and it seems so depressing. Move, ? Like where? Affordable? Where? I guess we just need to keep processing.
Then my son is about half way in his journey, and I know I’m being affected. Worrying, but trying not to. He’s pretty far away, and I miss him. I guess it’s just letting go. Geez, when I was his age I was married, in college and in Arizona. So, it’s just we’re a close family, (actually, we don’t really much family). I have a sister and brother, and my husband has 2 brothers we don’t speak to. So not much family.
Oh well, I’ll try not and obsess too much about it all.