Thursday updates!!!

The exciting news is my kappa light chains went from 1010 to 45 after 4 shots. Velcade is a proteasome (sp??)inhibitor and I must be responding wonderfully.  Pomalyst is an immudualtory(sp??) drug so works differently. I did have great results with Revlimid before Pomalyst for 5 years then it just stopped being effective. To say I’m excited is an understatement. What a drop. So FYI normal high for kappa light chains is 19 so I’m almost there.  the Lamda light chains were in the normal range at 9.2 mg/L … Amazing!!! I can hardly believe it. Overall I feel good. Maybe a little spacey but I can handle that. My labs are absolutely great except with velcade the platelets are affected. So mine have dropped significantly. But the nurse said the do rebound so that’s good news.

Today we drove down to Sacramento for my shot. We left at 8 am and missed most of the heavy traffic, so we made it Mercy Cancer center by 8:45. That is really good. I was in an out in no time and had the oncology nurse that injects slower than the other nurses.(remember the stabber) 🙂 I’m so happy about my numbers that I don’t care how I get the shot.

Then we went to Winco for stuff, then Costco. We were on our way home by 10:30.How’s that for being in time space continuim.  Anyway, I’m starting to feel the dex which I’m now taking in the morning. Pat Killingsworth had a doctor friend of his say taking dex in the morning works with you body better. I have to say since I’ve done this now for the last month, it is better. I don’t get quite as high or the crash doesn’t seem quite as intense. We’ll see how today and tomorrow goes.

The Budget stuff seems challenging. I’ve had 6 no spend days, so thats good. But once again I’m just not putting savings aside except for our automatic 401k. At least we’re doing that. Our expenses, cost of living, is just covered by B’s paychecks. A little frustrating.

Also, I’m sure we’re going to get hit with taxes. We are going to have to do payments , because we just don’t have x amount for taxes ready to use. Since we sold stock last year, thats where the hit will come. But , that paid for the roof, and septic fix, and gravel and who know what  else.

Anyway, off to sleep off some of the dex!

 

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