Almost ready…

We are almost fully loaded and ready to go. I’ve been working on menus and you tubing dutch oven recipes for when the kids arrive.  Since our daughter still needs to work she’ll be coming up on Thursday and my son on Thursday too, probably with girlfriend, in tow. I know her from my library and homeschool days. Nice young lady.

Since check in isn’t till later we will try and get there around 12;30. Usually, they have the sites ready. We’ve ben there so many times now , we kinda know the routine.  I’m planning on at least 3 dutch oven meals, mac and cheese, lasagne, and maybe the chili with corn bread. I’d like to do a chicken meal too.

Our weather has turned a little cooler. Mid 90’s. We do have a house sitter coming to help with the chores as my daughter is gone 11 hours a day.  The young person ( only 23)is transgender and a very nice person. His family lives in Washington but he lives in our area with my sons’ best friend. That will take pressure off my daughter trying to come home and do everything. Our elderly neighbor is going away for 2 weeks and asked us to feed his cat, so that adds to the list of daily stuff…

Well, off to go lounge in the pool for a while with a cold drink.

 

 

Celebrate!!

Good news. All my labs have come back in the normal range. No abnormal protein on the SPEP test. Hurray… kappa light chains at 10.9   Lambda at 9.3   ratio at 1.17

So kappa went up slightly, lambda went down slightly and the ratio went up slightly.  All still within normal parameters. So next month will be interesting, as it will be 2 months off Velcade.  I’m thrilled to have good results and feel very fortunate. I’ll take whatever I can. Sometime this fall I’ll need Zometa but not right now.

Other good news, the Questran has really been a miracle worker. No GI issues at all.  Normal everything plus there’s no urgent , better get to the restroom.  Honestly, I’m not sure why I waited so long to try this. Since we’re in Tahoe this week and the bathrooms are a walk away, I’m feeling confident I’ll be okay.  So happy with this development.

The other good news is our credit for completing 6 years of the HAMP program has been credited to our account. So we maybe going ahead with the Harp program refi but I haven’t heard back from anyone  yet.  with the interest rate due to go up again( as per the Hamp program) in October, we need this to go thru so our payments can be lower.

I emailed both loan officers and do hope to hear something about it today.

Dinner : I think I’m ordering a pizza . It’s still going to be 103 today so too hot to use the oven. Last night my daughter made a nice tomato ,fresh mozzarella salad with grilled salmon. Quite yummy. Plus I didn’t have to cook.

On another note, I went to the Koffee klatch yesterday. Nice to see everyone. But the library news is 6 hours taken from the Applegate branch. Wow, I certainly wouldn’t have a job anymore. I’m guessing only the manager will be doing those 4 hour shifts. It’s really only a matter time before they close Applegate. Actually, I was pretty shocked since with the other 2 branches closing I thought Applegate would get more hours.  Plus the hours are only going to keep circulation down since it’ll be 10-2. No after school, no working people. That will, of course, eventually support that circulation is so low, we need to close this branch.It’s a shame really to see this happen but it doesn’t surprise me with the current administration. Oh well, I have backed away and feel good about supporting Nevada County libraries. I love libraries and am always grateful  for their existence.

Book review, ‘Modern Potluck’

This is a very ” in ” cookbook. People living in urban areas and even small communities that are into community events will like this book. It’s about the modern potluck.  I like the recipes enough, but most were not things I would make.  Partly, because my potluck days are over. We did tons of potlucks when are kids were inWaldorf school and home school. Now, not so much. I think if you’re part of a church or some group, these recipes would be great.

https://www.amazon.com/Modern-Potluck-Beautiful-Food-Share/dp/0804187118/ref=sr_1_sc_1?ie=UTF8&qid=1469751995&sr=8-1-spell&keywords=modern+potuclk

 

another tree goes…

The other night @ 10 pm we all hear this huge crack and boom. It was too dark to see anything but we sorta figured it was one of our bark beetle trees that’s dead. Big surprise, we see in the morning that it’s a huge oak that has cracked apart and barely misses out neighbors house. This was a huge branch from a huge oak.  That evening @ 7 my husband hears this crack and pop. Sure enough another branch off this huge oak lands on our side of the fence. it must be the drought that has caused these trees to just give up. Even though we had a good winter with rain it wasn’t enough after 5 years of drought. So that leaves one huge branch left on this tree.

We also have a very large oak near our house. It wouldn’t hit the house if it fell but it would squish cars!! So we called a guy we had gotten a number of that cuts trees very reasonably. Remember the one guy said he’d have to bring the crane and then were looking at another $1800 minimum. so this guy will rope the branches down and will do it for $5oo. what a deal. I can’t wait. Of course, I will leave as I’m too nervous to watch these things. I just have a feeling that our oak is going to crack and go. We know it has had ants in it and water damage in some holes. So it’s only a matter of time.  So, were gone 2 weeks off an on so, it’ll have to be after that. the good part will be oak fire wood.

 

It’s another hot day of 102 ,ugh…I hate the heat.

Dinner : Taco Tuesday. I’m buying to hot to cook.

 

 

Simple Sunday

Another hot day, as is the rest of the nation going thru. We have over 100 degrees all week till around Saturday. Then when we head off to Tahoe, it will drop back down to the low 90’s . since we have a house sitter coming that will make it easier for him.  My daughter will actually be coming home at night, but she works and is gone 11 hours so we thought  it best to have someone do the chores.

Our wi fi has been acting up and at first, we thought it was ATT, but now I think our router is going. Routers only last so long and this one is about 3 years old. Plus when it went out the other day, the printer wouldn’t reconnect. I spent 3 hours trying everything. Finally,I went down to staple’s bought a printer on sale. Came home and in 2 minutes, had it set up for wireless printing. So, these things happen and we just need to deal with them. I will check this week. at Best buy or have B go in to see what they have.

Tomorrow , I go for my big labs and , of course, I will anxiously await the results. I’m not too worried about these as it’s only been 4 weeks. But still, you never can tell. I don’t know if that anxiety ever goes away if you’re a cancer patient.

Dinner is chicken salad, tofu salad, sliced tomatoes, and freshly made refrigerator pickles…

Amazing!!!

eleanorroosevelt143006As a long term cancer survivor of multiple Myeloma, I have had my share of side effects, issues, fatigue, etc…yada ,yada ,yada… It’s not fun being on drugs/chemo for so long but one puts up with it because well,  we want to live. It’s kinda a no brainer. But one of the issues I have had really since my SCT is G I issues.  It really started about 3 years into Revlimid when I noticed I was going to the bathroom a lot. I didn’t really quite register( a little slow on the uptake here) that I was having diarrhea a lot. I know I kept mentioning it to my doctor but he didn’t seemed concerned or said take Immodium.  It started to get worse and I would need to go immediately after I ate and then I needed to know where bathrooms were etc. I didn’t go out to eat unless I felt sure I could get home in time. I figured this was something I had to live with.  I’m off Velcade and Dex now but I was still having the same issues.  Eat, bathroom…..not fun.  Then last week I read the Myeloma Beacons column by Tom Shell about issues he’s having and GI issues. I always enjoy these columns written by very good writers and interesting people.  But I also read all the comments since I learn SO MUCH from other people. Well, someone, Katie, mentioned a drug called Questran for diarrhea and I immediately was interested. I posted a comment to her about the drug etc, but it wasn’t published for some reason, so she didn’t get a chance to answer my couple of questions.  Well, I looked it up and read all the details especially about bile and after eating the release of certain enzymes. It sounded exactly like what I have.  I’m guessing this is a result of so many drugs over the years but also, I think my body is triggering this reaction.  Well, the uptake is I  e-messaged my doctor, who always is very responsive, and said could he order me a prescription for me to try since I’ll be going on vacation in August and I’m concerned about diarrhea.  He said it’s worth a try and did.

AMAZING!!!! I’m taking 1 teaspoon in the morning and I have had absolutely no diarrhea. I want to give a huge shout out to Katie who wrote that comment, because I am amazed.  I don’t to get too confident yet but today is day 6 and it is amazing to feel just a little more confident about going out to town or whatever. I am taking a very small dose and it’s doing the job.

If this has been an issue for you read what it says about the drug. It really described my condition totally.