My labs are in and I am so excited, happy and a little delirious. My kappa light chains went DOWN to 13.6 mg/L from 14.2 mg/L so very happy about that. The lambda light chains are at 11.4 so virtually unchanged. The ratio went down to 1.19. Believe me, I am beyond happy. It has been an amazing year for me. I know things will change as life changes but for now, I am celebrating. My doctor just smiles and nods his head since there’s not really a lot to talk about. I was all ready to talk about future treatment plans but hey, another day. so I won’t see him ’till September, labs will be pushed out a little farther than I’ve done, to around 9 weeks. I can handle it…. I can handle it … I can handle it… 🙂
We were out of there really fast and then headed up to Costco. Gee, the parking lot at 10 am was insane. the only thing I could think of is that people were trying to beat the heat. since it was a payday, we splurged on pool shock( a bucket for $65), a new lantern for the tent trailer, some trail hikers for B ( 19.99) and a few other thingsI can’t remember.
Then we got home by 12 noon. It was almost a 100 already.
Today is not as hot at around 98 degrees. Tomorrow even better.
I’m going to grill a marguerite pizza.
Happy Fathers Day to my dear husband who was and is the best Dad ever. Since I did’nt have a Dad around growing up B is everything I would have wanted in a Dad. Our son made waffles with Farmers Market strawberries, scrambled eggs and bacon and veggie sausage. Pretty darn good.
Today, I’m going to the gym with my daughter and then home and float in the pool. B’s fathers day present, and anniversary, and birthday and Christmas is a new Intex pool. The one we bought from Costco 8 years ago finally bit the dust. So hopefully we will get lots of years out of this one.
I’m in the bedroom zone this week, so I may tidy the closet(again), and then wash windows and that’s about it.
It is so freaking hot here, it’s hard to breathe. It’s suppose to be 109 in sacramento. That is pretty darn hot. So we will be @ 103-4.
Tomorrow are my labs, and then a dentist(invisalgn) appt. Then Thursday is my oncologist appointment. We’ll see what the numbers say.
I have a load to go to Goodwill(small load) and I’m trying to get stuff out of the barn for my son to sell at the flea market. Hopefully he does this soon as I want it out of the way. There’s the 2 chairs and a bunch of other stuff.
My CBC was great. All good there except the hemoglobin was still .5 above normal. He had wanted me to drink 8 glasses of water a day. I did pretty good but not 8 glasses. Maybe got to 5-6 a day plus tea. I guess hemoglobin has to do with the oxygen in your blood. So he thought maybe I wasn’t hydrating enough. I’m not worried at only .5 over normal. but I’ll see what he says in June. In other good news, my kappa light chains still normal but it went up 2 points. So from 12.6 to 14.2. So here’s that trend of going up. I know I’ll come out of the normal range at some point but for now, it’s still in the normal range even with the 2 point increase. My Lambda went up too from 10.9 to 11.5 so another increase. And the ratio went up to from 1.16 to 1.23 . In myeloma numbers, the ratio is most important so still an increase. These are all in values of mg/L for those that want that . I can’t say I’m not a bit disappointed because I am just a little but hey this is month 10 going into month 11 of no drugs andI’m still within normal ranges. Oh, the good news too, was no detectable M-protein. So that’s the great news. the light chain tests though are more sensitive to myeloma cell, so the increase does show a trend. But, for now, I will celebrate LIFE!! I feel good well except for the aches and pains of normal stuff. My one year of stopping Velcade is June 23. June is never a good emotional month for me as I was officially diagnosed on June 15 of 2005. Funny how we remember some things exactly. Oh well, I’m grateful for modern medicine and my doctor and park and the ducks and the everything. ( That’s supposed to be funny).
It’s been windy here and we haven’t sat out at dinner even though the temperature is nice. The allergies are kicking in when that wind blows. I’m hoping to BBQ tonight if the wind is gone.
Here’s a picture of Hobbles the duck. yesterday we couldn’t find him at the park but he was back today. Whew…he’s called hobbles because about 2 years ago he got injured somehow and was not using his one leg. Now he uses it but just hobbles. He’s our buddy in the morning.
Today is cloudy and it was sprinkling this morning as we walked. At the end of this month, we will only have 2 months left till we hit year 5 of walking every day. I’m thinking going into year 5, I probably won’t be as OC about having to walk as I just need to keep walking. I need to for a number of reasons. It feels good to get my blood circulating first thing in the morning but more important, I feel like arthritis is starting to impact me. I’m pretty stiff til I get going but even thru out the day I notice I’m stiffer getting up and moving. Not a good thing, and I may go see my PC doctor and ask if that’s what this is.
So today I went and got my blood tests. It’s been 6 weeks, so we’ll see hoe things are. It’s hard to say in terms of how I feel because I generally feel excellent. My doctor was watching my hematocrit numbers as they were just slightly high. He wanted me to hydrate more but I pointed out that started after I was in cycle 2 of Velcade so???
I had a great introvert day. I did have to call the insurance as they said I had a balance on my last labs. But I’ve never had a co-pay on my labs. so 45 minutes later the nice lady did resolve it for me. Other than that it’s just me and the quiet today. I did my FlyLady zone( the living room) and since there’s not a lot to do there it’s done.
I’m not sure what I’m making for dinner. I have left – over brown rice so maybe that. It’s not exactly what I feel like but then I don’t know what I feel like and that’s always the problem. So I’ll just wing it till it’s closer to dinner time. My daughter doesn’t get home till 7 pm so we’ll see. My husband is in San Diego working so…???
I made homemade bread yesterday in the Zojirushi bread maker. I wanted to make half wholewheat and half organic white but thought I didn’t have the WW flour. I found it afterwards in the pantry. Still it came out very yummy.
We took the load and more to Goodwill. Not really frugal except it’s stuff gone and clears space both physically and mentally.
I’m making homemade pizza tonight instead of ordering out which I kinda wanted to do.
Not frugal but the FOL decided to pay for the mistake of $99 for the website I bought but wasnt the right foremat. That was nice of them as I was going to just donate the mistake and not have them pay. But since they have a large donation that was a bequest to the FOL they budgeted $ for the website. Also, they offered a $ gift to my daughter for actually doing all the website work. It would have cost them hundreds to have someone else design it so it worked out well.
Not much else going on. Next week I get my bloodwork done and I’m a little anxious about it but overall not too worried about. It’s just once a cancer patient always a cancer patient in your mind.
This will be a no spend weekend since the budget is used up till next payday 😦
It has been a nice day. No rain. Ha Ha. Still cold and frosty when we walked at 6:45 am. On Sundays, we try and go later and give ourselves a little break. Tomorrow marks the end of month 7 of year 4 of walking every day in the just keep walking project. I think the worst day last week was when the wind was blowing, the rain was pouring, and I was coughing. We only did 1 round. But intentional walking.
I went to the gym and it was very empty so that was nice. They do keep the music a little loud for my tastes but I put my earbuds in and it lessens the noise.
I’m certainly anxious about my labs this week but will go forth and hope for the best. I still feel good but with myeloma, sometimes that’s tricky. But even if my numbers go up( which is the trend) I think they’re still going to be in the normal range.
We finished our taxes with Turbo Tax and it was pretty easy. Changing the deductions and upping our 401 k last year will yield us a refund. First time in years. So yeah for that.
Of course, I have to write something about Trump and his insanity and instability. i am really scared of where all this is going. The man is certifiably nuts. His reality is so warped. The pictures of the inauguration show fewer people. He tried to get the NPS to actually find pictures that showed his inaccurate statement of it was million and a half people. It clearly was not. But he still believes it was plus the voter fraud. There was no voter fraud to the tune of 3-4 million illegal votes. it just is impossible and he will not see reason because he is a narcissist who cannot accept he didn’t win the popular vote. But what starts getting scarier is this administration trying to take away a womens’ right to an abortion. We are going back to the 1960’s people. Wake up. You may not believe in abortion for yourself but we must as women have the right to decide. Not some politician or man in Washington.
Then the whole immigration thing is almost more than I can take. Why is he excluding the 4 countries including Saudia Arabia that was responsible for 9/11. Because he has business dealings there. That’s the long and short of it. Closing immigration is not going to keep us safer. Right now the vetting system is extensive. It takes over 2 years to get a visa. What are these people thinking , it is just insanity. Then on Holocaust Remberence day for the President of the United States to not even say it was the Jews who were the target and millions of Jews died at the hands of the Nazis is utter disrespect for the whole tragic thing. To just say innocent people died is to undermine how tragic the Holocaust was. Millions of JEWS were murdered in gas chambers. Yes, many others did too but the whole reason for Nazi Germany was to eliminate the Jewish race. It was unbelievably disrespectful of Donald Trump to say what he said. The White Supremacists want people to believe it didn’t happen the way it did. They want it to be just ‘innocent’ people, not Jews.
This is wrong and I hope to the stars that we get thru this.
Dinner is a red lentil curry soup and some left over potroast I was going to shred and put on some tortillas.
My CBC came in all good. My usual slightly high MCH and something else. I think I vaguely remember my oncologist saying that this was due to the transplant. But I don’t know.
So the exciting news is my Kappa and lambda light chains are still all normal range plus the ratio is normal at 1.01
BUT, and this is a big but, this month’s numbers went up another 1 point from last month. So, last month my kappa light chains were at 11.7 mg/L and this month 12.8 mg/l so there is a trend here as this happened even the month before that. So, there is movement but at least it’s still all in the normal range. I see my doctor next so we’ll see what he says. Probably don’t worry about it till there’s something to worry about. The high end of normal is 19.4 so I’d still have a way to go.
So I’m thrilled to be at 6 months and still all normal.
Today, I’m going to the gym and then get cash for gas and food. Then to meet a friend for a coffee.
Last night’s dinner was awful. The couscous ended up mushy, the baked cod was chewy and the spaghetti squash was actually pretty good.
Tonight is crockpot Thursday, but I don’t have anything really planned for it. I could do beans but I don’t think so today. My back up meal is breakfast for dinner.
Update: normal SPEP test. which is serum protein electrophoresis !! The light chain test is more sensitive so with the trending it probably means movement, but for now, I am one happy person. It’s a great way to end the year.